It's been a while but thank God things have gotten better. I've moved. Nik moved to Chicago so he's doing better. Caitlin got a nanny job and a new apartment so she's doing better. Sam's the same and Alec's the same. So some things are the same, some better. Work is crazy, lots of overtime and I'm getting a trainee in a couple of weeks, always fun but the extra money will be nice.
We went to Camp Sunshine which was amazing, as always. We made lots of new connections and friends this year. We're going to New York in October with Caitlin and Rachel for Pumpkinfest in Central Park. We cannot wait!!! So excited. I'll try and update more. Sam only had 2 surgeries this year so far. One ICP and one revision. Still having bad headaches but she's growing and has lost about 10 lbs so she looks a little more like herself. She looks healthy. Looks can be deceiving. Ok we're going to bed and get ready for a big day of unpacking and putting away!!!
8.15.2008
3.23.2008
Wrong
Today is wrong. There's too much going on.
1. Sam's swelling is back, she feels like shit. How much longer are we supposed to do this?
2. Alec has to practice taking the bus tomorrow. It's like I told him he has to fly to Hong Kong by himself. He's freaking out. I gave him Xanax.
3. I'm broke.
4. Neither one of my older children who live away from home called me. Today is Easter. I don't care that they don't believe...I do and they didn't call me.
5. My dad is insisting on entertaining my brother repeatedly which means I can't go there. My brother, who's wife said Sam was retarded because she was afraid of them. My brother who told my sister Jenni that he was going to shoot her. And now my sisters are embracing my brother. That's fine, I just don't want to hear about it. I don't want pictures of their kids. He can kiss my ass.
6. I have no one to talk to. Absolutely no one. NO ONE. NO ONE. NO ONE.
1. Sam's swelling is back, she feels like shit. How much longer are we supposed to do this?
2. Alec has to practice taking the bus tomorrow. It's like I told him he has to fly to Hong Kong by himself. He's freaking out. I gave him Xanax.
3. I'm broke.
4. Neither one of my older children who live away from home called me. Today is Easter. I don't care that they don't believe...I do and they didn't call me.
5. My dad is insisting on entertaining my brother repeatedly which means I can't go there. My brother, who's wife said Sam was retarded because she was afraid of them. My brother who told my sister Jenni that he was going to shoot her. And now my sisters are embracing my brother. That's fine, I just don't want to hear about it. I don't want pictures of their kids. He can kiss my ass.
6. I have no one to talk to. Absolutely no one. NO ONE. NO ONE. NO ONE.
3.19.2008
Long Time....
Nothing good going on. Sam had an ICP monitor in February...14th to be exact. Since then she's had a fluid leak into her scalp. I think it's getting better but they had to turn down the pressure on her shunt to stop the leak. So she's constantly nauseated and headachy but I guess they have to stop the leak.
I might write some more tomorrow, everything is overwhelming.
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