New Valve

Sam got a new valve last week and seems to be feeling better, although she had a headache all day yesterday and slept til noon. So I am a little nervous about that. But hopefully it is just post surgery tiredness and headache. (Yeah right!!!). On Saturday the kids spent the night at Ruthies. Now keep in mind Sam just had 3 surgeries last week. I was at work. Chris is supposed to be responsible. I called the kids and no one answered so I called Chris at like 8pm to see if he had heard from them. Of course, he was highly intoxicated. So if something happened to one of the kids, I would have to leave work to take care of it. God forbid he be responsible for one fricking night. Then last night he calls Sam and tells her at 8pm that he has to go to bed early as he has to get up early for work. He missed work 4 days last week. He cannot take Alec to camp because he is an idiot and did not check the dates and took the wrong days off. He was not at work this morning, he is still at home probably hungover, probably not going to work today. So as usual he is full of shit. God I am so sick of him and his bull shit. He tells me he is going to be short money this month. Yeah, I would be short too if I only worked one day last week. I do not know what he tells people at work but I am sure he is using Sam as an excuse. Loser.

We're still here....

Well, tomorrow they'll either replace or fix Sam's valve...they can't tell if it's working cuz they can't see it. It's facing upwards instead of outwards. So hopefully we'll be home on Wednesday. I know she needs this shunt but if it wasn't so high maintenance that would be awesome. Surgery number 32 is outrageous and out of control. Love, Ellen

Friday

Sam is going back in Friday for an ICP monitor. On Monday, she woke up with a bad headache and next to her burr hole she has a big bump. So I took her downtown, they said it was a calcium deposit on a tendon and it was being irritated. They said her headaches were from allergies. It just doesn't make sense to me. She's been doing really well. Today the bump was bigger so we called and they're gonna do the ICP. We'll see. I'm just frustrated and I know Sam is too.