Home...again

Sam got home yesterday....She is feeling ok, having some sleep issues last night but that's probably to be expected after 11 days in the hospital. I think we're going to home school her for the rest of the year...There are only 3 weeks left. She can't put anything over her scar so I think she'd be pretty self concious going to school.

Alec went and saw the endocrine doc on Friday and she is recommending a feeding tube. He kind of knows about it but not really. All he heard was "see you in 4 months". I am pretty sure he takes that to mean, nothing will be done for 4 months. But I will talk to him before his GI appt.

I'm ok, I'm stressed and hot (it's like 90 today) but ok. Off for the next 2 days and I'm mainly going to be relaxing.

P.S. I mailed my application for Camp Sunshine, have you?????? xoxoxoxoxo
But a very special women I knew passed away a few days ago while I was in the hospital....My good friend Linda. She was diagnosed with colon cancer four years ago and even then the doctors said she would only live 16 months, but Linda would not hear of another person telling her how long she would have on Earth! She chose to fight her Cancer and four years later(take that Cancer!)she passed away peacefully....pray for her family and friends as this was a great loss to all that knew her.....she was a valient fighter, as are all the CB kids and people with diseases. Remember them, and remember their spirit on this Memorial Day, and remember what they all teach us....You shouldn't listen to statistics on life, but the quality, and willingness to live life!

Taken directly from Sam's website....I have an awesome kid.

Gram positive bacteria....and yeast

Well Sam has sprouted the above in her head...so far the bone is negative. But she's going to need a pic line and then home antibiotics. We can deal with that. She's going to miss a trip to Wisconsin with Nana tho, to watch her cousin Callie graduate from high school. She's been thru so much...The debridement was very painful, I've never seen her cry from pain at the hospital from surgery. Well, except for the spinal repair....she is my hero.. I love her to death.

Alec is probably going to get a feeding tube...I'm happy but I'm sad. The endocrinologist said she thinks it's time. He needs to grow and start puberty and all that fun stuff. He's going to be 12 in 4 months and looks like he's about 8 or 9. Chris is dead set against it and asked Alec "why is she doing this to you?". I want to punch him in the face but I'll settle for verbal attacks. Like, well Chris your son hasn't grown in a year and a half and is wearing the same size clothes and shoes. When it happened to Sam it was bad, but when it happens to Alec it's ok??? I don't think so. Alec was hysterical during the blood draw, I can't even imagine whats going to happen if he has surgery. There won't be any walking him to the OR. They'll be dragging him or maybe just give him a nice little cocktail before...He will be a mess. But he's my mess and I love him. We have so much fun together, usually. He has quite a sense of humor. He comes up with the wittiest things, then I laugh and tell him he's funny and then he gets insulted. Sounds like George Costanza.

They're letting Caitlin walk for graduation even tho she is still 2 credits short. She's taking 2 classes thru the mail to finish out. Her dad bought her a laptop. He never even gave Nik anything for graduation. Must be the money he's saving now that I don't get any child support. She's so excited about her future. So am I. I just wish I were rich so she could have an easier time. Struggle will be good for her tho. I love her.

Nik is doing ok, back on the island, working for the summer. Caitlin is actually working with him so that should be fun. He got a summons for federal jury duty. He's not happy. When he goes, I have to drive him since he can't drive. He's going to be 21 in 6 weeks. Dang, I'm old. I love him.

Fever

Sam still has a fever, it's off and on for 3 days, she's been on strong antibiotics for 3 days. We still have no idea whats going on. I'm going back tomorrow, I brought Alec home. He asked me tonight how people have sex.....Jeez...this is not what I came home for....

Home....Sweet....Home...

Alec went and saw the Wizard of Oz on stage today, his entire school went. He had fun...He ate onion rings today. I've eaten them in front of him dozens of times...but for some reason they smelled good to him today and he ate 3. Sam is still in the hospital...headaches are bad but it's not the shunt. Probably no infection. They're going to mess around with her meds a bit and maybe add depakote, apparently in small doses it's good for headaches. So we'll try it. She should be home tomorrow. Alec is in a really good mood today, I think he's missed me and is glad I am home with him tonight...I know I've missed him and I'm glad I'm home with him tonight....Now if I could just get him to eat chips with his mouth closed....Lord Almighty...

24

My favorite tv show on tv right now, by far.....But my favorite show ever is NYPD Blue. I could watch that show every day...well, I usually do on my off days.....Oh and the number of surgical procedures Sam will have gone thru by this time tomorrow. Another ICP monitor. We hope it shows something. It probably won't. It's so weird, she's nauseated, headachy, gets short of breath, but I think she gets dehydrated when she's dumping...They were supposed to do it today but Dr Sood was just jam packed today with surgeries, so they said she'll be first tomorrow. We have to be there at 6am. Our friend Samantha Mills is there now, she has had more than 200 revisions...She's really cute. So we're looking forward to at least knowing someone who's inpatient too. That always makes it a bit easier. Ok, 6am comes early....I'll update her website tomorrow.

My head hurts!!!!

Ok so this was my week at work. Wednesday....some guy hits a chicks vehicle on the freeway, and then follows her up to 7-11....he steals her purse and gets in his car, he drives away, promptly hitting a tree or something. Gets out of his car and runs. He's about 6ft 3 300 lbs...Been in prison for last 20 years, been out for 4 months. He does not want to go back. He's coked out and mad. So little Scott Ivey finds him and starts screaming for dear life on the radio. Kenny gets there, takes one look at the situation and says to himself, Holy Shit and gets in there with his tazer. About 5 guys later, he's in custody. They bring him in, he has a cut on his wrist but it's not bleeding. He's all sweaty and apparently running from the cops activates your gastrointestinal system (need I say more). So in the meantime I've had 7 other prisoners come in, so I throw Mr Poopy in his cell. A couple of hours later, I tell him I need to process him, he says he's not interested in cooperating, so I turn off his phone. Well this is apparently the thing that pisses him off, so he starts biting his wrist, where it was cut. I look a little while later, his cell is completely covered in blood, puddles of it on the floor, on the door where he's been kicking, sprayed on the walls. They ended up having to do surgery. Then we had 2 guys do 3 separate sexual assaults....Next day, I get 911 call from a guy who says he is checking on his dad and his dad, who is 88, has a bag over his head and he doesn't think he's breathing. I tell him to open the bag so he can check and he just starts screaming, he's dead, he's dead. That was my week at work.

Well Chris got laid off finally, he was lying about his "schedule change". I have no idea what he's going to do. Since he has no money, I have filed for child support...hahahahaha...probably never get it but it's something I need to do. Sam is feeling like crap, headaches are bad. They started her on an antidepressant...We'll try it but I don't think that's what the problem is. Alec is doing ok....he has an appt with psychologist this week. Endo is in 2 weeks. Nik is still a slob...I worked overtime today....and Caitlin is with her friends. I'm going to bed...Happy Mothers Day!!!!!

Chickened Out!!!!

Nik came home last night, it's only for a week, but it's been fun. So far he's watched me cut the grass, bought me some groceries and left his shoes in the middle of the living room. Maybe tomorrow he can take me to lunch. We had fun in Chicago, Sam's back has been bothering her so I took her downtown today and they drew some blood to check her electrolytes. Her back is really sunken in where her shunt is and about 4 inches above it. Nancy says it's usually a sign of dehydration but she's not dehydrated. Nancy was supposed to call me back with results but you know how that goes. I had to pick her up from school at 10:30 due to back pain.

She has a concert tomorrow but I have a meeting at work I can't miss. And she's been invited to the honors ceremony on Thursday, hopefully no one calls in sick so I can make that.

Chris didn't go to work again today. He calls me last night and tells me not to stress out the kids but he had to go into work late for meetings. So I'm like, why would the kids get stressed out because you have to work different hours. I knew he was lying and everytime I drove by his house today, he was home. He didn't go to work. He's all freaked out about possibly getting laid off and he keeps calling in sick. Dumb!!!! And I know he's using Sam as an excuse. Bullshit!!!

I've been so busy lately, working and so I actually went to a social function on Saturday. Redford, the gateway to the suburbs (our township motto, since we border Detroit, has a cinquo de mayo festival every year now. So I went after work, it was fun, I hung out with my boyfriend, Brian (not really). Caitlin calls him my boyfriend.

24. President Logan is a P word. That's all I'm gonna say.

Chicago Chicago

Sam is having some breathing problems so Dr Sood wants us to go downtown tomorrow and get an echo cardiogram. She's supposed to go to school tomorrow, she has a meeting regarding the trip, we are going to Chicago on Thursday for 2 days and she's all worried she won't be able to go to the trip. She went to school yesterday but had to come home early and didn't go today. The ICP monitor showed nothing was really wrong with her shunt, as far as her pressures go.

Alec likes his new school, we have a conference tomorrow at 2:30. He's eating a peanut butter sandwhich at breakfast and supposed to at lunch, we're still working on the lunch one. Caitlin is having fun as an 18 year old but my child support has been cut off 2 months earlier than I thought so the money woes continue, multiplying, never ending. Nikolaas is coming home on Sunday for about 10 days, before he moves to Grandma's cottage on the island and all the fun that entails. Mary Alice, we'll both have kids on boats this summer.

Ok imagine this. Prisoner in cell #1, who was featured on Fox News Channel and CNN as the deranged person trying to burn down a gas station in Redford MI. This guy looks like Leonard, the crazy guy in Full Metal Jacket who kills his sgt then himself. Well, he was back in our jail for court today. He was waiting to go back to the big house when he decided he had waited long enough. He flooded his cell, which in turn ruined some carpet that had just been replaced and also made the ceiling in the garage leak, toilet water all over police cars...not a good thing. We're supposed to check the prisoners every 30 mins. But who has time to do that...When you work the jail, you're also working fire radio and answering 911. When I fed him at about 5, it was dry, by the time I got there at 7pm it was flooded. So I'm sure I'll get written up for this. It just sux....I have a headache...I'm going to bed....



Tomorrow - well really today...Sam is ok, they think maybe she has allergies, her echo came out ok...So we're going to try some sinus and allergy meds for next 4 days then go back Monday and get stitches out and see how she's feeling. So we're heading for Chicago....can't wait..it'll be fun.